• Cystic fibrosis (CF) is the most common inherited, life threatening condition affecting young Australians.
  • CF is an inherited condition. For a child to be born with CF both parents must be genetic carriers for CF.
  • Approximately 1 out of 25 Australians are genetic carriers for CF.
  • 1 in every 2,500 babies in Australia will be born with CF.
  • There are approximately 3000 people diagnosed with CF Australia wide.
  • CF a complex condition that affects the respiratory, digestive and reproductive systems.
  • In Australia, all babies are screened at birth for the most common mutations of the CF gene using a test on a spot of blood. If this is positive, a sweat test will be done to measure the amount of salt in the sweat. It is the sweat test which provides the diagnosis of CF.
  • If 2 people are genetic carriers for CF and they have a child, there is a:
    • 25% chance that the child will have CF
    • 50% chance that the child will be a genetic carrier for CF
    • 25% chance that the child will not have CF and will not be a genetic carrier for CF.
  • It is a complex condition that affects the respiratory, digestive and reproductive systems.
  • People with CF often require relentless treatments, significant daily medications, physiotherapy and frequent hospitalisations. There is currently no cure.
  • Major advances in treatment, particularly over the last 25 years, have enabled many people with CF to live active and productive lives.
  • The average life expectancy for someone with CF born today is 37.
  • Most people with CF undertake a range of treatments each day to maintain the health of their lungs. Treatment can be very time consuming, and may include chest physiotherapy, multiple inhaled and oral medications, and exercise.
  • Most people with CF take enzyme replacement tablets with each meal to aid digestion. For some people this can mean taking up to 40 enzyme replacements tablets a day.
  • Regular visits to CF clinics, hospitalisation and antibiotic treatment are common for people with CF.